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| Presenting gifts to Thalassemia patients |
Thalassemia (congenital hemolytic anemia) is a single-gene hereditary disorder that causes chronic anemia and iron overload, severely affecting the patient's physical condition and quality of life. If not properly treated, the disease can lead to severe complications such as bone deformities, liver failure, heart failure, delayed development, and even death.
With this year’s theme: “Joining Hands for Thalassemia Patients: Connecting the Community, Prioritizing Patients”, the event not only aimed to raise community awareness about this dangerous genetic disease but also spread a message of love, social responsibility, and practical care for patients.
At the meeting, the Board of Directors of Hue Central Hospital, the leaders of the Hematology and Blood Transfusion Center, the Pediatrics Center, along with sponsors presented 100 meaningful gifts to encourage and motivate patients to overcome challenges in their treatment journey.
It is known that Hue Central Hospital currently manages and treats more than 500 Thalassemia patients, with approximately 40-50 new cases per year. Many cases of the disease gene are incidentally discovered during hematological screening. Notably, Hue Central Hospital is a pioneer in the Central and Central Highlands regions in implementing allogeneic stem cell transplantation for Thalassemia patients and they have had successfully performed 7 transplants. This is a significant breakthrough in treatment, opening up the possibility of a complete cure for patients, helping them break free from lifelong dependence on blood transfusions and iron-chelating medications.